Health Law & Policy Institute
Cancer and the Law: 1998
Table of Contents
I.
Types of Health Care Plans and Health Care Insurance
II.
Applying for Insurance Coverage
What is a "pre-existing
condition"?
If I have a pre-existing condition, am I required to disclose it on
my insurance application?
What is a "genetic test"?
May a health insurer require that I undergo a genetic test as part
of the application process?
May I be denied coverage based upon the results of a genetic test?
If I am denied coverage, what options do I have?
If I have been denied coverage, am I required to disclose the denial
on any subsequent application for insurance?
Who has access to the information on my insurance application?
Do I have a right to privacy of any of the information provided or
obtained in the application process?III.
Retaining Insurance Coverage Once I have coverage,
may my insurer deny me future coverage based upon the number or amount
of claims that I file?
Once I have coverage, may my insurer increase my premiums based upon
the number or amount of claims that I file?
What is COBRA?
Who may be entitled to COBRA benefits?
What must I do to obtain COBRA benefits?
How long do COBRA benefits last?
Can COBRA benefits be extended?
Can COBRA benefits be discontinued?
Where can I obtain more information about my rights to COBRA continuation
coverage?
What is HIPAA?
How does HIPAA affect my insurance coverage?IV.
Making Insurance Claims What must I do
to make an insurance claim?
What can I do to improve my chances of having a claim approved?
Is my insurer required to respond to my claim within a certain period
of time?
What if my insurer denies a claim?
May I resubmit a denied claim?
Will my health plan cover the cost of reconstructive surgery following
a mastectomy?
What about coverage for "experimental" therapy?
What is "medically necessary treatment"?
Is an insurer required to cover treatment that is not medically necessary?
What is utilization review?
If the utilization review results in the denial of my claim, what recourse
do I have?
What is an IRO?
What must I do to have an IRO review my claim?
If the IRO approves my claim, what happens?
If the IRO denies my claim, what recourse do I have?
Are there any other ways to get approval of a claim if my medical condition
is serious?
Where can I get more information on the IRO process?V. ERISA What is ERISA?
How do I know if I am subject to ERISA?
How may ERISA affect any insurance claim I may have?VI.
Health Care Decision Making What can I do to
make my wishes surrounding medical treatment known?
What is a Durable Power of Attorney for Health Care?
What is a living will?
Will I be able to get pain medication if I need it? What if my doctor
is reluctant to prescribe pain medication for me?VII.
Employment Questions What is the Americans
with Disabilities Act?
If my employer discovers that I have cancer, can I be fired?
Can I be fired because cancer prevents me from working?
What if I want to continue working, but I can only do so part time?
Is there anything I can do to keep my job?
What is the Family and Medical Leave Act?
I believe my cancer may have been caused by exposure to toxic substances
at work. What rights do I have?VIII.
References and Additional Resources
I. Types of Health Care Plans and Health Care Insurance
Traditional
indemnity "fee-for-service" comes in several forms, including:
- individual insurance;
- employer group
plan insurance;
- non-employer group
plan insurance (for example, through a professional or trade association);
and
- employer funded
self-insurance.
Each of these plans is
governed by a different set of laws.
- Indemnity or "fee-for-service" plans involve traditional insurance plans. The
insured person pays a monthly premium, and the plan agrees to pay all
or part of the cost of covered medical services. Usually, you first
pay an annual deductible (often $200 to $500), after which the plan
generally pays 80% of the "usual and customary" charge for the medical
services.
In addition to traditional
indemnity insurance, several forms of "managed care" plans are now available.
- HMOs are
the oldest type of managed care plan. In exchange for a monthly fee,
the HMO agrees to provide health care services, including preventive
services such as physical exams. There is generally no "deductible"
payable in an HMO, and the patient's out-of-pocket costs are minimal.
- PPOs are
another form of managed care plan. PPOs provide members with a list
of "preferred providers." If you go to a physician on the list, you
pay either a discounted fee or a fixed co-payment per office visit.
You may still go to physicians not on the list, but a PPO plan will
only reimburse a portion of charges for such "out-of-network" visits,
often 80%.
- Self-funded or
self-insured health care plans are plans in which an employer assumes
the financial risk of providing health care for its employees. Most
large employers are self-insured. In a self-insured plan, the employer
pays the provider directly or indirectly through an administrator. Self-insured
plans may operate in the same manner as indemnity plans, PPOs, or HMOs.
Significantly, federal Employee Retirement Income Security Act (ERISA)
excludes self-insured plans from state regulation through the Texas
Department of Insurance (TDI), or any state agency. There are only limited
federal protections, most of which require employees to adhere to the
terms of the plan instrument. This distinction is very important, since
a patient in a self-insured plan will not have many of the protections
provided by state law that govern insurance companies and HMOs. If you
are unsure whether a plan provided by your employer is a self-funded
plan, check with your employee benefits coordinator.
II.
Applying for Insurance Coverage
What is a "pre-existing
condition"?
- A pre-existing condition
is a health condition that existed before the policy was purchased.
Generally, for both group and individual insurance plans, if you have
seen a physician within the previous 12 months (this period may vary
in different plans) for a health condition, that particular condition
will not be covered, either permanently or for a specified waiting period
(usually six months to two years), or you may be refused coverage or
charged a higher premium for the coverage. The National Coalition for
Cancer Survivorship (NCCS) points out that cancer survivors have a pre-existing
condition from the time of diagnosis through the remainder of their
life, since a cancer survivor usually needs to see a physician at least
once a year for a checkup.
- The federal Health
Insurance Portability and Accountability Act of 1996 (HIPAA) may
protect employees with group health plans who change jobs (and therefore
health plans) by giving employees "credits" against the waiting period
for coverage of pre-existing conditions. For example, if you are covered
by one employer's health plan for 10 months, the maximum 12 month waiting
period is reduced by the 10 months you were already covered under your
prior plan, so your maximum waiting period for the pre-existing condition
is two months. If you have worked 12 months or longer for the first
employer, there will be no gap in coverage. No waiting periods at all
may be used for coverage of pregnancy, newborns, or adopted children.
- If the HMO offers
to cover a group, no group member may be denied coverage for a pre-existing
condition. HMOs offering individual coverage cannot limit coverage because
of pre-existing conditions, but may charge a higher co-payment for up
to 12 months for services related to the pre-existing condition.
- Texas law prohibits
insurance companies and HMOs from denying coverage because of a woman's
diagnosis or history of a fibrocystic breast condition.
- A child subject
to court-ordered medical support (for example, pursuant to a divorce
decree) may not be denied coverage by an insurer on the basis of a pre-existing
condition.
If I have a pre-existing
condition, am I required to disclose it on my insurance application?
You should carefully
disclose any pre-existing conditions, visits to physicians, hospitalizations,
and other requested health care information on your application for enrollment.
Even though such disclosure may result in coverage being denied, a waiting
period for pre-existing condition coverage, or a higher premium, it is
better to face such issues at the application stage rather than later.
If you provide false information, or misrepresent your health conditions,
this could result in denial of benefits or cancellation of your policy.
What is a "genetic
test"?
A genetic test is a
specialized laboratory test that measures your inherited traits for predisposition
to a clinically recognized disease or condition. These tests are increasingly
used to predict the risk of cancer. Such a test may show the relative
likelihood of you eventually having the disease or condition. "Genetic
test" (as defined under Texas insurance law) does not include a routine
physical examination, or a chemical, blood or urine analysis.
May a health insurer
require that I undergo a genetic test as part of the application process?
Texas law provides that
a group health benefit plan may require genetic tests only in limited
circumstances, and must notify the applicant that the test is required,
disclose to the applicant the proposed use of the test, and obtain the
applicant's consent. The law does not apply to individual health insurance
policies or self-insured employer plans.
May I be denied coverage
based upon the results of a genetic test?
A group health benefit
plan may not use genetic information to reject, deny, limit, cancel, refuse
to renew, or increase the premiums for coverage under the benefit plan.
This legal restriction does not apply to disease-specific (e.g., cancer-only)
policies, or to Medicare supplemental policies.
If I am denied coverage,
what options do I have?
- The Medical Information
Bureau (MIB) is an organization that provides insurance companies
with reports on the medical history of applicants. If you are denied
coverage because of a report, you may obtain a free copy of your report
by calling (617) 426-3660 or writing the MIB at P.O. Box 105, Essex
Station, Boston, MA 02112.
- If you were denied
coverage on the basis of a report from MIB, first obtain a copy and
verify the information in the report is accurate. If there are errors,
advise the MIB in writing and work with them to get the errors corrected.
- Also, try obtaining
coverage from other insurance companies or HMOs. Check with business,
professional, or other associations that may offer group coverage, and
check governmental options such as Medicare or Medicaid.
- You may be eligible
to obtain health insurance from the Texas Health Insurance Risk Pool,
if you: (1) have been denied health insurance by at least two private
companies, or (2) have access to insurance but it won't cover pre-existing
conditions, or the rates charged are higher than the Pool's rates or
(3) have been without employer-sponsored coverage for less than 63 days
after having had such coverage for at least 18 months. In addition to
these limits, people with certain conditions (including cancer) will
automatically be accepted for coverage. The coverage costs about 50%
more than other commercially available coverage. To obtain more information
on the plan, contact the Texas Department of Insurance.
If I have been denied
coverage, am I required to disclose the denial on any subsequent application
for insurance?
As with any other requested
information on the application for insurance enrollment, it is best to
truthfully answer the questions asked, to keep the insurer from later
claiming that you committed fraud or misrepresented your health condition,
and later denying coverage or canceling the policy. In any event, the
insurer may learn such information from the MIB.
Who has access to
the information on my insurance application?
In the application form,
you will be asked to authorize the insurer to share the information with
the Medical Information Bureau. The MIB will give summaries of the information
to other member insurance companies who request the information.
Do I have a right
to privacy of any of the information provided or obtained in the application
process?
Any specific facts and
information relating to particular policies or claims are confidential
while in the possession of an insurance company, organization, association,
or other entity holding a certificate of authority from the State Board
of Insurance and may not be disclosed to any other person, except as specifically
provided by law. Insurance companies are permitted to allow access to
others within the insurance industry--see the discussion of the Medical
Information Board above.
Also, applicant information
is protected from disclosure by HMOs. Any information pertaining to the
diagnosis, treatment, or health of any enrollee or applicant by any HMO
is required to be held in confidence and may not be disclosed to any person
(without consent) except in limited circumstances such as a lawsuit or
court order.
III.
Retaining Insurance Coverage
Once I have coverage,
may my insurer deny me future coverage based upon the number or amount
of claims that I file?
Group coverage-employers
are not required to provide health care plans to their employees, and
may legally cancel coverage for the entire group at any time. Some group
policies allow the company to cancel an individual's coverage for fraud,
or where you have reached the "lifetime maximum" for benefits under the
policy. An insurer covering the group may not cancel an individual policyholder
on the basis of (non-fraudulent) claims made. Some policies also have
lifetime maximums for the amount to be paid for specific diseases or conditions.
Individual coverage must now be of the type known as "guaranteed renewable" (at the option
of the policyholder). However, all policies can be canceled for failure
to pay premiums, fraud, and upon reaching any lifetime payment maximum.
Policies may also be canceled if the insurance company stops selling individual
insurance coverage, or if the policyholder no longer lives or works in
an area where the insurance company is authorized to provide coverage.
Once I have coverage,
may my insurer increase my premiums based upon the number or amount of
claims that I file?
No. Under a "guaranteed
renewable" type of policy, the company cannot raise your premiums unless
it raises premiums for every policyholder in the same "class" (all persons
of a particular age, sex and geographic region covered that such type
of policy). Group policies charge premiums based on the health expenses
of all the members of the group, so any increase in premium cost would
be shared among all members--not passed on to an individual policyholder.
What is COBRA?
The federal Consolidated
Omnibus Budget Reconciliation Act (COBRA) may allow you (and/or your
dependents) to keep your employer-sponsored health care insurance coverage
for 18 to 36 months if you lose your job for any reason except "gross
misconduct." COBRA may also allow you to extend your insurance if you
lose coverage because of reduced work hours. COBRA does not apply to employer
health benefit plans with fewer than 20 employees. COBRA coverage applies
in several cases, including:
- death of a covered
employee;
- termination of
employment (other than for gross misconduct);
- divorce;
- employee becoming
entitled to Medicaid; or
- dependent child
ceases to be dependent.
Who may be entitled
to COBRA benefits?
- A covered employee;
- a spouse or dependent
child of a covered employee; or
- a retired covered
employee.
What must I do to obtain
COBRA benefits?
Within 60 days of qualifying
for COBRA coverage (e.g. 60 days from the loss of a job), you must advise
your employer that you wish to continue coverage under COBRA, and pay
the entire monthly premium for the coverage (including any portion previously
paid by the employer) plus an administrative fee of 2%.
How long do COBRA
benefits last?
Former employees are
entitled to an 18-month extension of coverage. Dependents and divorced
spouses are generally entitled to a 36-month extension of benefits.
Can COBRA benefits
be extended?
Certain events, such
as divorce, may extend COBRA benefits for an additional 36 months.
Can COBRA benefits
be discontinued?
COBRA benefits may be
discontinued in the following situations:
- An employer ceases
to offer an insurance plan to current employees.
- You become eligible
for another plan (unless such plan has an exclusion for pre-existing
conditions-if so, you keep your original policy until the pre-existing
exclusion expires).
- You apply for
and obtain Medicare coverage.
- You fail to pay
the monthly premiums.
- You fail to accept
COBRA coverage within 60 days of becoming eligible for it.
Where can I obtain more
information about my rights to COBRA continuation coverage?
Contact the Dallas office
of the U.S. Department of Labor, Pension and Welfare Benefits Administration,
at 1-214-767-6831. Also, if COBRA does not apply to your situation, or
if your COBRA coverage has expired, you may be entitled to state conversion
or continuation options, and should contact the Texas Department of Insurance,
at 1-800-252-3439 for assistance in determining whether you may be eligible.
What is HIPAA?
The federal Health Insurance
Portability and Accountability Act of 1996 (HIPAA) contains provisions
designed to assist employees who change jobs or who become unemployed.
Under HIPAA, employees who meet eligibility conditions must be accepted
into a group or individual plan, ensuring that their health coverage is
continuous.
How does HIPAA affect
my insurance coverage?
HIPAA helps protect
people with pre-existing conditions from losing coverage temporarily when
they change jobs. Most health insurance policies (but not HMOs) do not
cover "pre-existing conditions" for a period of 6 to 24 months. HIPAA
limits these periods to a maximum of one 12-month period, and also reduces
the pre-existing exclusion period by one month for each month an employee
was covered by his or her old plan. For example, if you have a history
of cancer, and switch from one company health plan to another because
you have changed jobs, HIPAA may reduce the period of any pre-existing
condition waiting periods. HIPAA may not help an employee who leaves a
company that has no health plan--your new employer's health plan in this
case may still impose waiting periods of up to one year before covering
a pre-existing condition.
IV.
Making Insurance Claims
What must I do to
make an insurance claim?
With an HMO, no claim
is necessary. For many PPOs, claims-handling procedures may be very simple
for matters such as routine office visits (usually handled by your physician
with a co-payment by you), so long as you stay within the approved network.
If you go outside the network or have traditional indemnity insurance,
it is important that you follow any requirements of your policy in submitting
claims, and especially time requirements.
What can I do to
improve my chances of having a claim approved?
Be sure to check to
see if "pre-certification" is required for the type of medical care you
will be receiving. For example, most policies now require that any hospital
stay (other than an emergency) be approved before you are admitted to
the hospital. If you fail to obtain any necessary pre-certification, your
plan may pay reduced benefits. However, obtaining pre-certification is
no guarantee that the plan will pay all the charges associated with the
treatment. Also, your plan may restrict the time or day of admission;
e.g., not allowing admission over a weekend for a routine surgical procedure
when the surgery will not be performed until after the weekend. In summary,
you should:
- obtain pre-certification
as required by your health plan;
- understand your
plan's exclusions and limitations before scheduling medical treatment;
and
- in the case of
an emergency hospital admission, notify your health plan (insurance
company or HMO) within the time period required by your plan.
Is my insurer required
to respond to my claim within a certain period of time?
Yes. Texas law requires
insurance companies to pay properly submitted claims according to the
following time requirements.
- The insurance company
must acknowledge receiving your claim within 15 business days.
- The company may
ask for additional information, including details about the medical
treatment.
- The company then
has 15 days after you send all requested information to accept or reject
your claim.
- The company can
take up to 45 days to accept or reject your claim if it sends you a
notice explaining the delay.
- If the company agrees
to pay the claim, it has five business days to send you a check.
What if my insurer denies
a claim?
If your insurance company
fails to pay your claim in accordance with the above timetable, you have
a right to sue to recover your claim, plus 18% damages and attorneys'
fees. You may also appeal the decision internally to your insurance company
or HMO in accordance with their appeal procedures, and/or file a complaint
with the Texas Department of Insurance. Also, see the discussion of "Independent
Review Organizations" below.
May I resubmit a
denied claim?
Yes. You may resubmit
a claim for review where you discover the insurance company has made an
error. For example, if you (or your physician) properly obtained pre-certification
for a hospital stay, and the company only paid your claim at a reduced
rate, you and/or your physician should write to the insurance company
and tell them the date pre-certification was obtained. Also, most insurance
policies agree to pay the "usual and customary" charges for medical services,
based on rates usually charged by physicians and other providers in your
area. If your claim was paid at a greatly reduced rate, have your physician
write a letter to the company justifying his or her charge. You could
also research charges in your area by calling other specialists and asking
what they charge for the same procedure, and then send a letter to the
insurance company with the results of your research.
Will my health plan
cover the cost of reconstructive surgery following a mastectomy?
Yes. For plans that
are delivered, issued for delivery or renewed on or after January 1, 1998,
Texas law mandates that a health benefit plan that provides coverage for
mastectomy must provide coverage for breast reconstruction. The coverage
may be subject to the same deductible or copayment applicable to mastectomy.
Furthermore, a health benefit plan may not offer a financial incentive
for a patient to forgo breast reconstruction or to waive the coverage
of a reconstruction.
What about coverage
for "experimental" therapy?
Most insurance policies
do not cover treatment that is experimental or investigational. However,
virtually every treatment is "experimental" when first introduced, so
the issue is really whether the proposed treatment is experimental based
on current information. If your doctor believes you need a treatment that
the insurance company has denied as experimental, the insurance company
will need to be convinced that the treatment is recommended by experts
in the field, that the patient will benefit from the treatment, and that
the treatment is for the patient's benefit-not just for the benefit of
furthering scientific research. For more information, see Cancer Treatments
Your Insurance Should Cover, published by the Association of Community
Cancer Centers.
What is "medically
necessary treatment"?
Both insurance companies
and HMOs only cover "medically necessary" care. Texas law defines "appropriate
and medically necessary" as "the standard for health care services as
determined by physicians and health care providers in accordance with
the prevailing practices and standards of the medical profession and community."
For example, most health plans would refuse to pay for laetrile therapy
to treat cancer, because it has not been shown to be safe and effective.
A bone marrow transplant to treat breast cancer might be refused on the
basis that such therapy is unproven in the treatment of breast cancer.
Is an insurer required
to cover treatment that is not medically necessary?
A health care plan is
not required to cover treatment that is not "medically necessary." A problem
may arise when your plan refuses to provide (or pay for) treatment you
or your physician feel is medically necessary (such as a lab test, specialist
referral, or prescription medication). The problem may arise with your
physician refusing to authorize a specialist referral or test you feel
is needed, or you and your physician may agree on treatment that the plan
administrator won't approve.
What is utilization
review?
The utilization review
process evaluates requests for medical treatment and determines whether
the treatment is medically necessary. State law allows HMOs and insurance
companies to conduct such a review of proposed or ongoing treatment.
If the utilization
review results in the denial of my claim, what recourse do I have?
If your HMO declines
to provide care (or your insurance company declines to pay for care) that
you feel is medically necessary, you have the right to request that an
Independent Review Organization (IRO) review your health plan's decision.
What is an IRO?
An Independent Review
Organization is a state licensed organization that conducts an independent,
unbiased review of a health care plan's decision to deny care where a
patient (or the patient's physician) believes the care is medically necessary.
IROs are licensed by the Texas Department of Insurance.
What must I do to
have an IRO review my claim?
You or anyone acting
on your behalf (e.g., your physician) may initiate a request for IRO review.
By law, when your HMO or insurer denies treatment you have requested,
your health plan is required to send you the forms and other information
necessary for an IRO review. You simply complete the forms and return
them to your HMO or insurer. Your health plan is required to pay for the
costs of the review. If your health plan does not send you the necessary
forms or advise you of the right to have your claim reviewed by an IRO,
contact the Texas Department of Insurance for assistance.
If the IRO approves
my claim, what happens?
If an IRO agrees your
requested treatment is medically necessary, your health plan must pay
for your care. Regardless of its decision, the IRO will furnish you with
a notice of its decision that includes:
- the basis for
the IRO's decision;
- a description
of any guidelines used in making the decision;
- qualifications
of the IRO personnel who reviewed your case; and
- certification
that the IRO has no "conflict of interest" with your health plan which
could cast doubt on the IRO's independence.
If the IRO denies my
claim, what recourse do I have?
The IRO process is intended
to give patients a quick and easy way to resolve denial of care disputes
without the expense of going to court or dealing with corporate bureaucracy.
However, if your HMO or insurance company denies medically necessary care,
you may have a right to sue them if you can prove you were injured by
the denial of care, even if the IRO decides against you. To file a lawsuit,
you would need to get a lawyer to represent you.
Are there any other
ways to get approval of a claim if my medical condition is serious?
In an emergency situation,
you do not have to wait for a treatment coverage decision from an IRO.
If you believe you need emergency care, the IRO process does not affect
your right to seek such emergency care. If your health plan denies payment
for the emergency care, you can still use the IRO process. However, if
the IRO decides in favor of the health plan, you may be liable for the
costs of the emergency treatment.
Where can I get more
information on the IRO process?
Contact the Texas Department
of Insurance IRO Information Line at 1-888-TDI-2IRO (834-2476).
V.
ERISA
What is ERISA?
The Employee Retirement
Income Security Act (ERISA) is a federal law that regulates benefit plans
offered by employers, such as pension plans and some health care plans.
Where an employer is self-insured, ERISA excludes the plans from state
regulation. For example, an employer may contract with an HMO to provide
health care in a self-funded plan, and the plan will not be subject to
regulation by the Texas Department of Insurance (TDI).
How do I know if
I am subject to ERISA?
Check with your employee
benefits coordinator.
How may ERISA affect
any insurance claim I may have?
If your health care
plan is subject to ERISA, you may not have the protection of state laws
that regulate insurance companies or HMOs.
VI.
Health Care Decision Making
What can I do to
make my wishes surrounding medical treatment known?
You can (and probably
should) execute a Durable Power of Attorney for Health Care, as
well as a Living Will. Forms for both are found in the Texas statutes
and are readily available from hospitals and many physicians. You may
not need a lawyer's assistance to complete these documents, but if there
is anything in the documents that you do not understand, a lawyer will
be able to explain it to you. It is also very important that you alert
your physicians and other health care providers about the existence of
these documents.
These two documents
help to ensure that your treatment decisions are known and respected,
even if you should become incapacitated or otherwise unable to make the
decision yourself. Texas law dictates that in the absence of these documents,
decisions regarding treatment and the withdrawal of life-sustaining procedures
will be left to the patient's family members who are to make the decision
based on what the patient would desire, if known.
What is a Durable
Power of Attorney for Health Care?
A Durable Power of Attorney
for Health Care allows you (the "principal") to name another person as
your "agent" to make health care decisions in the event you become incapacitated.
You may execute a Durable Power of Attorney for Health Care at any time
you wish. However, it will not become effective unless or until you become
incapacitated (unable to understand and appreciate the nature and consequences
of a treatment decision).
With the exception of
your health/residential care provider(s) and their employees, you may
select any competent person over the age of 18 to serve as your agent.
It is a good idea to choose someone you trust and with whom you
are free to candidly discuss your wishes surrounding treatment decisions.
It is also important that you discuss the Power of Attorney with your
physician or health care provider before you sign it to make sure you
understand the nature and range of your decisions that may be made on
your behalf. You must sign the actual document in the presence of two
or more witnesses. For the power of attorney to be valid, these witnesses
must not be the agent, the principal's health care provider, a relative
(by blood or marriage), or anyone who might inherit or be entitled to
a share of your estate upon your death.
What is a living
will?
A living will, known
in Texas as a Directive to Physicians, is a document allowing an individual,
whose death is imminent, to cause life support systems to be discontinued
and be allowed to die a natural death. In addition, the individual may
name an agent to make the decision for the individual if he or she becomes
comatose, incompetent, or otherwise incapable of communication.
A Directive to Physicians
may be executed at any time by a competent adult, but does not become
effective until a terminal condition (certified by two physicians) exists
and it is determined that the application of life-sustaining procedures
would serve only to artificially postpone the moment of death. Moreover,
the attending physician must determine that death is imminent or will
result within a relatively short time without the application of life-sustaining
procedures. Thus, a Directive may serve as your final expression of your
legal right to refuse unwanted medical and surgical treatment and to accept
the consequences from that refusal.
Like the Durable Power
of Attorney for Health Care discussed above, a Directive to Physicians
must meet certain legal requirements to be valid. It has similar requirements
for witnesses (e.g., not related by blood/marriage, not entitled to inherit,
etc.)
Will I be able to
get pain medication if I need it? What if my doctor is reluctant to prescribe
pain medication for me?
Yes. The Intractable
Pain Treatment Act is a Texas law that protects physicians from disciplinary
action for prescribing or administering otherwise dangerous drugs or controlled
substances in the course of treatment of a person for intractable pain.
"Intractable pain" is defined as "a pain state in which the cause of the
pain cannot be removed or otherwise treated and which in the generally
accepted course of medical practice no relief or cure of the cause of
the pain is possible or none has been found after reasonable efforts."
The proper relief of
chronic pain is a matter between the individual physician and his or her
patient. There was, at one time, a perception among physicians that they
would be subject to discipline by the State Board of Medical Examiners
for prescribing narcotic relief for chronic pain. However, many physicians
are now aware that the board's primary concern is that narcotics stay
with the patient for whom they are prescribed and are not diverted for
use by others. If you feel your pain control needs are not being met properly,
you may want to consult a palliative care specialist, who can often be
found in major cancer hospitals.
VII.
Employment Questions
What is the Americans
with Disabilities Act?
The Americans with Disabilities
Act (ADA) is a federal law that prohibits discrimination against individuals
with disabilities. Employers with 15 or more employees are covered by
the ADA.
If my employer discovers
that I have cancer, can I be fired?
No. An employer cannot
terminate an otherwise qualified employee on the basis of the employee's
disability. A person who is substantially impaired in one or more major
life activities is considered "disabled" under the ADA. Cancer is a "disability"
for purposes of the ADA, so individuals with cancer are protected by the
ADA.
The ADA also prohibits
discrimination against associates of individuals with disabilities.
For example, it would be illegal for an employer to terminate an employee
whose spouse has cancer based on fears that the added stresses or time
demands would affect the employee's performance or attendance or would
result in higher health care costs.
Can I be fired because
cancer prevents me from working?
Perhaps. The ADA requires
that employers make "reasonable accommodations" for "otherwise qualified"
employees. An "otherwise qualified" employee is one who can perform the
job's essential functions, with or without reasonable accommodations.
Employers are only required
to accommodate individuals who make their disabilities known to
their employers and let their employers know that some accommodation is
required. Moreover, if an employee requests an accommodation, the employer
my request documentation of the employee's disability (if the disability
is not obvious).
What if I want to
continue working, but I can only do so part time?
It is possible that
job restructuring could be a reasonable accommodation. However, work attendance
is generally considered to be an essential job function, and an employer
may not be required to accommodate an employee's sporadic attendance over
a prolonged period of time. While employers must provide reasonable accommodation,
they are not required to incur "undue hardship." What constitutes undue
hardship depends on the cost or inconvenience of the accommodation, and
the resources of the employer. For example, reassignment of job responsibilities
may be less burdensome to a large company with more personnel than to
a smaller business with only a few employees in each position.
An additional consideration
is that a voluntary acceptance of part-time work may jeopardize some or
all of your employee benefits. You may want to consult an attorney to
determine if a reasonable accommodation could allow you to work enough
hours to maintain your benefits.
Is there anything
I can do to keep my job?
Check with your Human
Resources department about your company's sick leave policy and what accommodation
to your illness the company can make. They may provide some financial
benefits while you are unable to work. Additionally, if you have disability
insurance, and if you qualify, your Human Resources department can help
you apply.
What is the Family
and Medical Leave Act?
The Family and Medical
Leave Act is a federal law that protects employees who must take leaves
of absence because of family or medical emergencies. The law requires
employers with 50 or more employees to provide eligible employees with
unpaid leave for up to 12 weeks for the birth or adoption of a child;
the care of a seriously ill child, spouse, or parent, or the employee's
own serious illnesses.
To qualify, the employee
must have worked for the employer for at least 12 months and 1250 hours
during the 12-month period. The 12 weeks of unpaid leave may be taken
intermittently during a 12-month period. In some circumstances, employers
can require employees to use accrued sick leave or vacation before
the unpaid leave begins.
I believe my cancer
may have been caused by exposure to toxic substances at work. What rights
do I have?
Most employers carry
workers' compensation insurance, which provides benefits for employees
injured or made ill while in the course and scope of their employment.
There are strict requirements that must be met before one qualifies for
workers' compensation insurance for cancer treatment. First, you are required
to report your illness to your supervisor within a reasonable (but short)
period of time after it is diagnosed. Next, you must be prepared to prove
that your cancer was caused by something you were exposed to while in
the course and scope of your employment, and not other factors such as
genetics, personal habits such as smoking, etc.
If you believe your
cancer was caused by a work-related condition, you should consult an attorney.
Additionally, Texas law provides for an ombudsman program to assist workers
and their families. These people assist unrepresented claimants and other
parties to make sure their rights in the Worker's Compensation system
are protected. All employers are required by law to notify their employees
of the ombudsman program.
VIII.
References and Additional Resources
Agency for Health
Care Policy and Research (AHCPR), Choosing and Using a Health Plan,
Executive Office Center, Suite 501, 2101 East Jefferson Street, Rockville,
MD 20852. 1-800-358-9295.
American Cancer Society, 1-800-ACS-2345. Managed Care and Cancer Control. http://www.cancer.org
Association of Community
Cancer Centers (ACCS) Cancer Treatments Your Insurance Should Cover,
11600 Nebel Street, Suite #201, Rockville, Maryland 20852.
Consumers' Checkbook Consumer's Guide to Health Plans 1-800-475-7283, http://consumer.checkbook.org/consumer/health/hmo.htm
County Indigent Health
Insurance: Check with the local county courthouse.
Health and Human
Services In Texas: A Reference Guide (available at some public libraries-contains
detailed information on federal and state health care programs).
Medicaid: 1-800-252-8263
Medicare: 1-800-772-1213
National Coalition
for Cancer Survivorship (NCCS) What Cancer Survivors Need
to Know about Health Insurance, 1011 Wayne Avenue, 5th Floor, Silver Spring, MD 20910. (301)-650-8868.
National Committee
for Quality Assurance (NCQA) Choosing Quality: Finding the Health
Plan That's Right for You (NCQA's Guide for Consumers). 1-888-275-7585, http://www.ncqa.org/consumer.htm
Office of Public
Insurance Counsel (OPIC), 333 Guadalupe Street, Suite 3-120, Austin,
TX 78701, (512) 322-4143.
Texas Department
of Health: 1100 West 49th Street, Austin, Texas 78756-3199. The phone
number is 512-458-7111 512-458-7714 (hearing impaired) http://www.tdh.state.tx.us/
Texas Department
of Insurance Questions and Answers about Your Health Care Coverage 333 Guadalupe, Austin, TX 78701 (Mail - P.O. Box 149104, Austin, TX
78714-9104). (512) 463-6169 or 1-800-578-4677 http://www.tdi.state.tx.us/index.html
Texas Rehabilitation
Commission: 512-483-4067 1-800-628-5115 (hearing impaired)
Veterans Administration:
1-800-827-1000 |